Finn
Finn had his first seizure at 16 weeks old. Mum, Helen, tells their story.
About Dravet Syndrome
If you're a newly diagnosed parent or carer looking for more information, or if you're a healthcare professional and you suspect Dravet Syndrome, you've come to the right place.
Support for Families
Find out more about the support we provide to families affected by Dravet Syndrome, including our annual Center Parcs weekend, our assistance grants and how to join us.
Our Research
We're committed to funding research that puts the needs of families living with Dravet Syndrome at its heart. Discover more here.
Please donate to help us support families, educate professionals and fund research
The Impact of Your Donations
Every one of our supporters’ fundraising efforts truly does make a difference, enabling us to carry out our mission to improve the lives of all those affected by Dravet Syndrome in the UK.
Read MoreDravet Journeys
Real life insights about living with Dravet Syndrome shared by our amazing community of families.
