Finn
Finn had his first seizure at 16 weeks old. Mum, Helen, tells their story.
Dravet Journeys
Receiving a diagnosis of Dravet Syndrome can be a frightening experience. Its important to remember you are not alone - other families are going through similar experiences. Here we share insights into their Dravet journeys.
We have gathered together a number of written stories and videos featuring children and adults from our Dravet Community. Find these through clicking on the filters, try searching for specific words e.g. "seizures", or simply browse the stories by clicking on the arrows. Always remember that, even though their symptoms and experiences may be similar, every child or adult with Dravet Syndrome is different and can present differently.
Paige
Paige had her first seizure at nine months old. It lasted for 4 and a half hours. Mum, Gemma and Dad, Martin share their story.
Frankie
Frankie had his first seizure at 6 weeks old, lasting over an hour. Mum, Stacey, shares their story.
Lucy
Lucy lives in Supported Independent Living. Mum, Denise, shares their journey.
Hannah
Hannah had her first seizure at 5 months old and was diagnosed with Dravet Syndrome aged 3 years old. Parents Mark and Fiona share their story.
Frank
At 4 months and 2 weeks old, Frank had his first seizure. Mum, Katie, shares their story.
Kaiden
Kaiden had his first seizure at 4 months old. Mum, Alicia, shares their story.
John Joseph
John Joseph lives in Northumberland with his mum, Georgina and younger sister, Nyla. He had his first seizure at five months old. Georgina shares their story.
